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Glad
you stopped by! Please take the time to let us know you were here and whether
you enjoyed your stay, by signing the guest book before moving on!
Name: Gamze
Comments
Thank you very much for this site.It is wonderful.I have been learning a lot of things from this site.
Name: Judy Feagain aviva
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I am a teacher of the visually impaired and have received a new student who has mito. I am interested in hearing from others who have children or work with children whose vision is affected by their mito to find out what kinds of educational programs are optimal.
Name: billie
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have just found out about two children in ohio who have mitochondreal am trying to help the parents get somr help any one out their that give me some addvise would really like it may GOD BLESS YOU MY EMAIL BILLIEJJELLYBEAN
Name: joe marshall
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hi Kathy, IT HAS BEEN A WHILE. I think your site is wonderful. It has been almost three years now since Patrick died. We since have adopted his 4 half siblings all who have the sane 3243g melas.Still on the same cocktail including idebenone..Love, Joe
Name: andrea armengol
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thanks for the words of encouragement, my nephew is 6 mths and possible has this disorder. waiting for test results now..it is good to know that other families are able to cope and find strength. i will give your site info to my brother...
Name: Chris
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Hey Jim, just browsing aeound... will check out more after checking out Craig's site... looks like you are touching and helping many people.
Name: Frank
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Finally--a mitochondrial site that I can actually understand! Thanks for all the great information in layman's terms.
Name: Mary Jo
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I WAS SO HAPPY TO FIND YOUR WEBSITE. IT REALLY MADR A DIFFERENCE. THANK YOU FOR HAVING THE ENERGY AND COMMITMENT TO MAKE IT HAPPEN.
Name: Melissa, Tyler's mom
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We are currently undrgoing the diagnosis procedure.
My son's neurologist has recommended a musle biopsy
Name: Fair
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I am a mito mom of a wonderful 18mon old girl Katie. Thanks for letting me know that I am not alone.
Name: Melinda Dotherow
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WOW! Great site. I am printing the info now to give to my therapists and friends that do not understand this disease. Keep up the good work. I will definitely visit often.
Name: Jerry Dailey
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I was diagonised with mito myopathy 7 yrs ago im from alabama
Name: Lynn
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Thanks for the info! My daughter may have Mito disease. Have ruled out many other metabolic diseases. Recently had liver biopsy & skin biopsy. Has liver disease, enlarged spleen, neutropenia, & g-tube/feeding issues. Was 1 pound 1 1/2 oz. at birth with other medical problems. Currently waiting for results of NPD type C, and Mito testing. Thanks again and keep up the good work!
Name: Heather
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I am really glad that I found this site. It has good information. I believe that my son has the disease and the site helped me a lot. Thanks!
Name: Ellie
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Northern CA, undiagnosed MITO, but strong clinical symptoms in my children and Sisters and nieces and nephews your info is really "user" friendly! thanks
Name: Karen
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mito mommie to Kira and Thomas. I think that this is great. Our dr. Boles has said we need to work together to develope centers of excellence, so we can all be helped. I think this is a step in the right direction.
Name: Eileen McMullin, fodmom
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Hello, I am mom to Seanie, age 7, unclassified Fatty Acid Oxidation Disorder (FOD). This disorder, along with Mitochondrial disorders, is detectable by Comprehensive Newborn Screening. I would like to thank the members of MITO-DOC for their efforts in getting NBC to to air the ER episode highlighting the need for and argument against, Comprehensive Newborn Screening. You are responsible for educating millions of people in a single night. Thank you.
Name: Misty McGlugritch
Comments
BBAN
Name: Tammy
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Thanks for the web site. I hope to be able to speak with other families going through the same as me and my two sons are. Good luck and keep on growing.
Name: Tammy
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Name: Friend A&F
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Here is an idea that may be worth the while! Florida does not screen routinely for metabolics that are very important. Other states are mandated (ie: NC screens for 30) to do so. Perhaps our state legislation and senate needs to hear from us!
Name: Faith
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The construction of our website is very informational... I am happy to see us adding to it and to see people visiting on the site. Thank you everybody! everybody...
Name: christine
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OK Gang you have all had more than enough time to send Jim a bio or a photo--chop-chop!! Let's make the this website even better than it is now by adding some beautiful smiles from our kids pictures and bios!! We need you to be active and supportive to help us make MITOdoc the #1 website for Mito info!!
Name: christine
Comments
OK Gang you have all had more than enough time to send Jim a bio or a photo--chop-chop!! Let's make the this website even better than it is now by adding some beautiful smiles from our kids pictures and bios!! We need you to be active and supportive to help us make MITOdoc the #1 website for Mito info!!
Name: Claire
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Wow! Your FAQ's are really wonderful--very easy to understand. The glossary is great as well, I hope it gets finished soon! Keep up the good work, you are a plus to the mito community.
Name: John
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Hi, just joined looking for info as was just diagnosed with mitochondrial disorder.
Middle aged and feeling older. Apparently it is adult onset. Doctors are still trying to narrow
it down. Right now it is a big cocktail of vitamins and other stuff to try for three months.
Name: Tony and Bobbi
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Just wanted to say we stopped by to see the websight. We will share it with others. Looks Wonderful! Give Faith our Love. Dad and Bobbi
Name: Cheryl
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What a great site!..... No words can express how appreciative we are for your commitment to the cause. It is people like you all, that make the difference in these childrens lives.
Name: Cheryl
Comments
What a great site!..... No words can
express how appreciative we are for
your commitment to the cause. It is people like you all, that make the
difference in these childrens lives.
Name: LISA (MAKENZIE'S) MOM
Comments
VERY NICE JIM AND GANG! KEEP UP THE GOOD WORK!
Name: Jim Daniels, Genetic Information & Patient Services, Inc
(GAPS)
Comments
I was glad to find this site where you combine personal support with good information on mitochondrial diseases. The Web has become the World Wide Library of information and communication for people with similar difficulties. These opportunities did not exist only a couple of years ago, but now you can reach and educate people all over the world who have these problems. Welcome to the Internet !
Name: Maria
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Best of luck on raising awareness and finding a cure.
Name: Melissa
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I met Faith in the Christian Bookstore a few days ago when she was looking for the song, "Beauty for Ashes" by Crystal Lewis. She is a sweet person and I will be praying and her family along with the rest of the group.
Name: Melissa
Comments
I met Faith in the Christian Bookstore a few days ago when she was looking for the song, "Beauty for Ashes" by Crystal Lewis. She is a sweet person and I will be praying and her family along with the rest of the group.
Name: christine
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looks great Jim keep up the good work
Name: Jim
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Hi...this seems to be working now - give it a whirl!
Name: Test
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Testing
Revised: 18 Jan 2001 07:23:22 -0600
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